Living Words

Stories and testimonials from PGH members and personal care managers.

These real cases show some of the ways in which PGH successfully and tangibly helps patients and their families.

"The most rewarding experience about working with patients is when they feel safe and trust that they are going to start the right journey. What we do is about saving lives. The proper diagnosis leads to the proper treatment and the way back to health."

- Louisa, Personal Care Manager

Louisa's Story

“When we first speak to patients it’s a stressful time for them and their family. They have received life-altering news and every case is unique. In some situations, the patient’s condition is facing complications or declining. We make sure that we move their case along as quickly as possible. When we are engaged early in the process, we can save valuable time and provide important information to find the best possible treatment.

We are always working to get the best care for patients, like securing appointments with heads of medical departments when nothing was available for months and helping them understand what treatments imply and their options.

We recently had a European patient with a rare type of lung cancer who had been given 6 months to live by an esteemed doctor at a prominent German hospital. His family, refusing to give up, suggested that he get a further medical opinion. PGH organized a review of his case by top doctors at the biggest research hospital in the U.S. After examining the medical documentation and medication, they told the patient he had over 10 years to live! And that when those 10 years approach, there will be new medications to help him.

The specialists were able to determine this because they have the largest database of anonymized patients with this rare type of lung cancer and a deeper understanding of outcomes and the long-term effectiveness of this medication. The patient is running a 5k every morning despite the diagnosis in all types of weather – amazing! This shows how having support, spirit, and the necessary medical access can play such an important role in changing the life expectancy and overall outcome.”

Patient-centered care